Eva was born with Cystic Fibrosis (CF) – a genetic disease that affects 1 in 3600 Canadians, and which 1 in 25 Canadians carry the gene for.
Tonight is the television premiere of 65_RedRoses, an award-winning documentary made about 23 year-old Eva’s battle with CF – a disease which affects several organs of the body, mostly the digestive system and the lungs, and causes a buildup of mucous which causes infections and makes it really hard to breathe (imagine breathing through a drinking straw 24/7). The median age of survival for CF is 37 years.
The documentary follows Eva as she waits for a double lung transplant, and centres on Eva’s online relationships (the title of the film comes from her online profile name) with other CF patients around the world through her blog. I encourage you to check out her online journal – it’s a fantastically honest portrayal of what it is like living with CF and the amazing strength that it takes to deal with all that comes along with this fatal disease.
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65_RedRoses airs tonight at 7pm on CBC’s The Passionate Eye, and I really encourage you to watch – I’m sure you’ll be inspired.
If you would like more information on Cystic Fibrosis, you can check out the Canadian Cystic Fibrosis Foundation’s website.
I had heard about this when it was screening at CIFF, but I didn't get the chance to see it. I just finished watching it on CBC – what a beautiful story.